I think most of my generation in New Zealand
grew up watching repeats of Friends and The Simpsons every weeknight. In most situations you can make a reference to either show, and everyone in
the room will have seen the episode so many times themselves they instantly get
what you mean. Personally every time I hear an oven timer go off, I feel the
urge to yell: “My Fajitas!” and when my hair gets particularly curly: “It’s the
humidity!” And I know every time one of my friends mentions Hungry, Hungry
Hippos that what they’re really playing is the waiting game.
It’s possible another diagnosis may be on
the horizon for me. Nothing confirmed yet; it could turn out to be absolutely
nothing. I wasn’t going to post about this, until I knew for sure either way
but then I realised “the waiting game” is a big part of living with chronic
illness. Whether it’s test results, approval for new medications, treatments to
start working, or answers to the cause of new symptoms, it feels like we’re
always waiting for something.
I went to see my GP to get some forms
filled in last Monday, and in the course of the appointment, I asked her to
check my blood pressure. I was pretty sure it was low. I’ve been having more
and more dizzy spells and headaches lately, especially upon standing up from
sitting or lying, and I’ve had a couple of unexplained falls as well. It was,
as I suspected, low but we were a little surprised by how low. At the time it
was taken, I was feeling fine which suggests it may be dipping even further
when I’m having dizzy spells. My GP suggested I should start drinking coffee to
raise it, and when I mentioned I’d found drinking water with added electrolytes
helped, she checked my blood test results and found my electrolytes levels are
also low. I think there are probably a lot of reasons this can happen, but the
one that my doctor thinks it could be is Addison’s disease. I don’t know too
much about it, and I’m resisting to urge to google anymore because the
Wikipedia page freaked me out. From what I have read, I do have all the
symptoms, but given that they are all fairly non-specific symptoms and could be
attributed to any one of the other conditions I already have, that doesn’t
really mean much.
Autoimmune disorders tend to run in packs,
so after you’ve been diagnosed with a few it’s not really all that much of a
surprise when another one is added. Even so, I have to admit the possibility of
this one has unsettled me a little, especially as I hadn’t even considered anything
new might be wrong, before my doctor brought it up. My GP said it’s quite hard
to diagnose, and she’s on leave for the next month, so for now it’s just extra
blood tests, self-monitoring of my blood pressure... and playing the waiting
game.
Whenever you’re waiting on something the
advice everyone gives is don’t think about it, but as we all know that’s like
trying not to think about elephant when someone tells you not to think about
elephants. Still, I’m doing my best not to worry about it at least.
The waiting game sucks. I really need to
get Hungry, Hungry Hippos.
Thanks for reading
Little Miss Autoimmune
Little Miss Autoimmune
Totally get the waiting game.. Hang in there!
ReplyDeleteThanks, Jen!
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